monograham's musings, inspirations & the like.
today is national diabetes day. in honor i revisited my take on graham's first days with diabetes. (read about it here). i remember that time as vividly as if it was yesterday. reading through the post brings back a flood of emotions. a figurative avalanche of sounds and smells and sights. but mostly what hit me is that it unveils THE split in my life, it pinpoints the very moment in which i first truly TRULY understood just how fragile life could be.* i couldn't write about it then. but i knew. it's there. between the words. the realization. another week and my beautiful boy could have slipped into a coma and passed away. he was indeed fading. becoming less graham. becoming less in spirit (quieter. deflated. drained). and in stature (he lost 11 pounds ..... nearly 20% of his bodyweight).
so please educate yourself. know the symptoms. know that insulin is NOT A CURE. know that graham's pancreas is broken and that no amount of cinnamon or sugar-restriction or bikram yoga will make it work again. know that he can have a cupcake. just like your child. but that he will need to count every carb and shoot insulin to manage it. know that keeping graham's blood sugar 'in range' sometimes feels like an insurmountable task. and just when we think we have puzzled out the code something as slippery as a growth spurt is there to remind us that we are nowhere near as capable as his once-perfect organ. know that we are tired. so very very tired. but that we are also thankful. thankful that we live where we do. in a place with resources. and access. and hope. know that diabetes is STILL A DEATH-SENTENCE in many parts of the world. and please understand that while a cure is possible, it is not an absolute. we need to continue to fight for it.
* an example of the fragility. as i was writing this post i received a text from graham's nurse at school. his blood sugar was 36. 120 is his target. he was THIRTY-SIX. he was hypoglycemic. this drop happened rapidly. he was fine less than an hour before when he got on the bus. he felt only slightly off ... a bit weak, slightly dizzy. he walked to the nurse's office. (hopefully not alone.) he pricked his finger. checked his blood. consumed quick-acting sugar tablets. if he hadn't done each and every one of these steps he could have fallen. passed out. had a seizure. so you see how we truly understand THE fragility.
the cat is officially out of the bag. monograham market, our vintage inspired pop-up shop, opens november 22 in the lower level of the shop. expect to find elegant holiday / wintery decor / barware & baubles / and lovely gifts for everyone on your list. debut weekend = nov 22 & nov 23. don't miss this. bring a friend / make it an outing / shop small / feel good.
if you know me, you know i love books. L.O.V.E.* i always have one in hand (or pocket or purse), have been known to sleep with them (much to my husband's bruised-leg-chagrin) and, of course, collect them. passionately. this seems to have passed down a generation. my kids rooms are filled. to the brim. to the point where most of the clothes in their closets have been relegated to floor space to free up MORE shelf space for books. (pragmatically, my oldest suggested just buying less clothes).
as a result of all this book love, monograham carries a beautifully curated collection of books. children's books. cook books. coffee table books. books for husbands. grandmothers. brother-in-laws. tweens. you get the picture. stop in to see our collection. its growing. and please share your 'book love' suggestions as well.
* i am also grateful to books. for they are what introduced me to the beauty of letterpress, which in turn launched my career.
just a small sampling of the books in my children's rooms.